Here you will find some information links.
The FDA has had an investigational-drug expanded access program in place for years and recently updated the rules in an attempt to be more clear. However,for most oncologists who only use the program infrequently, the paperwork has remained a confusing hurdle. This new site simplifies access to investigational drugs for patients and their oncologists.
NCI website for consumers and health care providers(HCPs)- has NCI clinical trials and PDQ-Physicians data query for cancer diagnosis and management.
3. www.clinicaltrials.gov and www.nci.nih.gov/ are the primary gov.sites
The U.S. National Institutes of Health, through its National Library of Medicine, has developed ClinicalTrials.gov to provide patients, family members and members of the public current information about clinical research studies.
Website for the Agency for Health Care Policy and Research (AHCPR) branch of Dept. of Health and Human Services (DHSS). Has guidelines on pain in cancer available on-line.
American Oncology Resources- privately run site for cross-links with other sites, newest clinical trials, literature. Another site is www.aicr.org..
Clinical trials by disease state listing- will refer to latest trials in all disease categories.
Similar to a-e. Intended for physicians.
For consumers, patients and clinicians thru PDRnet.com
Patients use on line data to match themselves into clinical trials
Website for dealing with cancer-related fatigue
Patient advocate foundation that goes to “bat” for patients when insurance companies refuse to cover or pay for legitimate services. An 80% success rate is claimed ( Dec 2000 Readers Digest) 1-800-532-5274
Another site that may help with useful tools.
For oncology drug indications and procedures to get information on access to investigational agents
A networking opportunity for cancer survivors and their family and caregivers.
The ACS website.
This multi-site referral and information center.
National Comprehensive Cancer Network- best current state of treatment for most cancers.
A web site for support of patients and their families with any illness that allows posting of messages and responses by all those who want to follow the progress and support the patient and their family.